Sunday, April 24, 2011

1 Year Old

It has been awhile since we have posted but we have some updated pictures that we will be adding soon. Caeden is doing great and growing up so fast! He is so much fun and we love spending every minute we can with him. Caeden is very active and walking, even running at times, and is definitely all boy!

Sunday, July 18, 2010

7 MONTHS OLD

It's hard to believe now that Caeden is 7 months old! Caeden has been doing great and is a healthy little boy! Denae and I have had so much fun with him and enjoy spending every minute we can with him.

We thought we would give everyone an update on what we have been doing the past couple of months.

Caeden got dedicated to the church on Mother's day. Caeden gave his mom a shirt with his hand print on it that says, "World's Best Mommy!"

For Father's day, my Mom and Denae took Caeden to get professional pictures taken. They came out great. Denae and Caeden made a collage of pictures and framed it so that I could take it to work with me and hang it up on the wall.

Also, we started feeding Caeden baby food and just started feeding him the 2nd stage of baby food. He has liked most of everything except green beans. His dirty diapers have started to have some strong smells and we have been told that it only gets worse from here on out.

Caeden has been healthy ever since he got his Broviac tube out. He is still a very happy baby and loves to smile and laugh. He is turning over from his back to his stomach and vice versa. He looks as if he could start crawling soon. Caeden can also sit up on his own. We give him a bath every night and he just loves to sit and relax in the warm water.

Unfortunately, Denae will be heading back to work on August 12th to start teaching again. This is going to be a hard transition for us. Thankfully, we have family that is able to take care of Caeden during the day so that we don't have to take him to daycare. Denae's mom will be the main one taking care of Caeden. My mom will be taking time off as much as she can to help out as well.

We have had an incredible amount of support with Caeden and his health issues. Everyone has been great including all of the staff at Double Eagle and Dennis Chavez Elementary Schools. One of the parents of Denae's students started a donation account for Caeden's medical bills. The account is at Wells Fargo Bank. Anyone wishing to donate to Caeden's fund can go to any Wells Fargo bank nationwide and write a check in his name and it will deposited into his account.

Saturday, May 1, 2010

No More Broviac!

Caeden had his Broviac central line removed on Thursday. He still had one day of antibiotics left so they put in an IV so we could finish the antibiotics. The reason they removed it when they did is because if it wasn't Thursday then it would have been the end of May before they could have removed it.

We were able to stay in the room when they removed Caeden's line. It was a very quick procedure and they gave Caeden a local anesthetic only. They put a patch over the hole and said we could remove it on Saturday. We went back Friday afternoon to the hospital so they could remove the IV.

It is so nice to not have to worry about the central line anymore. Denae and I are looking forward to giving Caeden his first REAL bath! We have only been able to give him sponge baths up to this point because of his line. When we give Caeden his first bath I think we will just let him play in the water for as long as he wants because I am sure he is gonna love it.

Caeden has been doing great and developing quite the personality! He is a very happy baby and smiles all the time. We looked forward to him staying healthy and spending quality time with him at home.

Thursday, April 15, 2010

Home Once Again

We were released from the hospital on Monday. We are giving Caeden antibiotics from home three times a day. Caeden has been doing really well and all of us are thrilled to be at home and sleeping in our own beds. Denae is able to get Caeden to giggle out load by kissing his neck and it is very cute to hear. He is back to himself and is a happy little guy.

We go back on Monday to see Dr. Mcloughlin for a follow-up appointment. She will probably have the nurses draw some blood to see where his levels are at and to make sure that they have continued to go down. On Tuesday, we will be taking Caeden to the pediatrician to get his 2 month shots. We are a little behind on his shots due to the multiple hospital stays and him being sick. We are a little nervous for Caeden to get his 2 month shots because they typically cause a fever and I am sure he will be fussy for a day or two.

Sunday, April 11, 2010

Easter & Hospital

Caeden was able to be home for his first Easter. We were released from the hospital on Good Friday. The Easter bunny made a surprise visit to see Caeden in the hospital. We spent Easter Sunday with both sides of the family and had a great time. It was so nice to be home once again and be with family. We were able to get all of the cousins together from the Hauquitz's side and take pictures in their matching outfits. Caeden got some new outfits from the Easter bunny which was very exciting.

Unfortunately, on Tuesday morning Caeden got a low grade fever. We went in and saw the doctor, they took some more blood tests and sent us home. We came back the next day so they could repeat the blood tests. Caeden still had a low grade fever on Wednesday night. He was very fussy and not his usual self. We contacted our pediatrician on Wednesday night and scheduled an appointment on Thursday morning. We wanted to rule out any basic or common sicknesses. The pediatrician tested him for strep throat and looked him over. The strep throat test came out negative however his fever had gone up to 100.9. Therefore, our pediatrician sent us back to UNM hospital. We were admitted in the hospital on Thursday night due to his elevated levels from the blood tests. They started him on the same antibiotics that he has previously been on. On Friday morning Dr. McLoughlin started him on a different antibiotic that is more specific to treat cholangitis. She feels that the last time he got cholangitis it was not fully cured. We will hopefully be released in a couple of days and can administer the antiobiotics at home. Caeden will be on this antibiotic three times a day for three weeks.

Due to our multiple hospital stays we have gotten to know many of the nurses in the general pediatric unit as well as the specialty pediatric unit. Everybody loves Caeden and now they all fight to get Caeden as a patient and take care of him. When we walk into the unit everybody acknowledges us and says hi. All of the nurses can't believe how big he has gotten and they enjoy seeing him get older and grow.

Saturday, April 3, 2010

Home Again

The results came back from the biopsy yesterday afternoon and Caeden does not have Cholangitis. The doctor said his liver looked good.

Therefore, we were discharged from the hospital. We set up an appointment with Dr. Lemon for Thursday 04/08 to schedule the removal of Caeden's Broviac central line. Since the biopsy results didn't show anything the doctors are directing their attention to the central line as the source of Caeden's fevers. We hope and pray that Caeden can stay healthy long enough to get his line out.

Wednesday, March 31, 2010

Update

We have fallen behind on posting recently be we have finally gotten around to giving everyone an update.

We were admitted into the hospital on Wednesday 03/17 because Caeden had a fever. Caeden had gotten the Synegis shot for RSV on Monday when the home care nurse came to change the dressing around the Broviac. Caeden got the fever on Tuesday and we were told that he might get a low grade fever due to the shot. He hadn't gotten any better by Wednesday and we actually had a follow up appointment with Dr. McLoughlin on that day. Our Doctor told us that the Synegis shot shouldn't cause a fever and she immediately admitted us. They did multiple blood tests and blood cultures but nothing showed an infection. Therefore, the doctors never found the cause of the fever and we were discharged on Tuesday 03/23.

Caeden was doing great at home until he contracted another fever on Monday 03/29 at 12:30 am. We called the GI doctor on call and he told us to go straight to the emergency room and that he would notify them that we were on our way. Denae and I packed our bags to prepare for another lengthy stay at the hospital and then left for the hospital. We arrived at the ER around 3:00 am. Thankfully, the ER was not busy at all and we got right in and they started giving Caeden antibiotics. They took a blood culture and did a urine test. We were only in the ER for about two hours and then they moved us up to the sixth floor in the Pediatric Specialty Care Unit. Once again they took multiple blood tests and nothing showed up. The blood cultures aren't growing any bacteria either. Our doctor is frustrated because she does not know what is wrong and why Caeden keeps getting fevers.

Therefore, Dr. McLoughlin scheduled to do a liver biopsy today. She is hoping that by doing this operation it will provide her with some answers. We had to go down to ultrasound around 11 this morning so that they could mark the exact spot where Dr. Mcloughlin needed to insert the needle. This step is crucial so that there won't be any main blood vessels that are in the way that could be punctured which would cause internal bleeding. We took Caeden down to the OR at about 12:30 and they took him in for the liver biopsy. We were able to go back to the recovery room around 1:30. Caeden could not eat for another 4 hours after the biopsy due to the risk of bleeding which made it a hard 4 hours. However, Caeden did really well and was a trooper. When 5:30 came around Caeden sucked down a bottle and was much happier.

We should hear some results tomorrow from the biopsy and find out what the next step is. We will post again once we have more news.